The Gifted Life Campaign is a strategic narrative change initiative aimed at addressing the urgent need for equity and justice in the organ transplantation sector. Through this campaign, we seek to shift the existing narrative surrounding organ transplantation by bringing attention to current disparities and inequities and create the public will to drive transformational change.
One of the primary goals of the campaign is to advocate for a trustworthy donor organ transplantation system. By fostering transparency, accountability, and ethical practices, the campaign aims to build trust within communities and increase confidence in the transplantation process. This involves addressing concerns, dispelling myths, and ensuring equitable access to transplantation for all individuals, irrespective of their background.
The campaign seeks to confront and eliminate inequities that exist within the organ transplantation system. This includes addressing disparities related to race, ethnicity, socioeconomic status, and access to healthcare resources. By promoting equity in organ allocation, improving access to transplantation, and reducing barriers faced by underrepresented communities, the campaign aims to create a more just and equitable system.
A crucial objective of the campaign is to improve the quality of life for Black and Brown patients with renal failure. By increasing access to timely and appropriate transplantation, providing culturally competent care, and addressing the unique needs of these communities, the campaign aims to enhance health outcomes and quality of life for individuals affected by renal failure.
Saving more lives through increased organ donation is a central focus of the campaign. By promoting deceased and living organ donation, raising awareness about the importance of donation, and addressing misconceptions, the campaign aims to expand the donor pool and improve transplant outcomes. Additionally, the campaign seeks to enhance equity by ensuring equitable access to transplantation, regardless of racial, ethnic, or socioeconomic background.
Click here to doante to the Jentosy Project. Your doantion will be used to support organ transplant patients and their families as they endure treatments and wait for life-saving transplants
Complete this form to be considered for The Gifted Life Speaker’s Bureau.
Share the message of The Gifted Life with your friendsm loved ones, colleagues and acquaintances. Invite them to one of our support groups so they can connect with other patients, experts, and opportunities to help them navigate the complex heathcare system.
Help us spread the word about The Gifted Life so that more people can be made aware of the stark disparities within organ transplantion, support causes like the Jentosy Project that’s directly helping families, and join the movement to bring equity into organ transplantion
The Gifted Life Town Halls are groundbreaking events that aim to foster open discussions, inspire meaningful connections, and ignite transformative action in reimagining organ transplantation.
As you know, kidney transplants make up over 80% of all organ transplants. African Americans represent just 13% of the U.S. population, yet they make up over 30% of the patients on the national organ transplant waiting list. Furthermore, despite being disproportionately affected by kidney disease, African American patients are less likely to receive a kidney transplant compared to their white counterparts, and when they do, they are 8 times more likely to receive a cadaver organ, which has a lifespan of 5-8 years compared to the 15-20 year life span of a donation by a live donor. These disparities are shocking and we are teaming with The Jentosy Project to help make an impact.
The National Town Halls will be held on the third Tuesday of every month, bringing together communities for open discussions and awareness-building. Each event features a panel discussion with four experts, including medical professionals, advocates, and community leaders. These panelists engage in insightful conversations about organ donation, transplantation, and other relevant healthcare topics. The primary goal of these town halls is to educate, inspire, and empower individuals and communities, fostering informed decisions about organ donation and providing support to those in need of life-saving transplants.
Two Support Groups will provide safe spaces for seniors and those living with disabilities and their families who are also impacted by organ donation and transplantation, specifically caregivers and patients on dialysis living on the waiting list. One group is for Caregivers and the other is for senior citizens and those living with disabilities.
These groups will offer emotional support, share personal experiences, and exchange valuable information on coping strategies, pre and post-transplant care, and managing the challenges associated with organ transplantation. Facilitated by Robert Sanchez, the support groups will create a compassionate community that fosters healing and resilience.
Help weekly on Tuesday, 6:00 PM – 7:15 PM EST.
Click here to sign up for a support group for patients (seniors and those living with disabilities).
Help weekly on Wednesday, 6:00 PM – 7:15 PM EST.
Click here to sign up for a support group for caregivers.
The Focus Groups serve as platforms for in-depth discussions on specific organ donation and transplantation topics. These small-group discussions will gather people living with disabilities and seniors and individuals directly affected by organ donation. The insights gathered from these focus groups help shape the campaign’s initiatives, policies, and strategies to better address the challenges and opportunities in the field of organ transplantation.
Click here to participate in an upcoming focus group.
